Research Handbook on End of Life Care and Society

The new 600-page Research Handbook on End of Life Care and Society will be available open access. This comprehensive Research Handbook provides an accessible overview of research on palliative and end-of-life care in its social context. It examines key theories, methods, and research findings, presenting crucial social science and public health perspectives. 

Here is the TOC -- 

1 Scoping the field of end of life care and society (David Clark and Annemarie Samuels)

PART I Theories, methods, and boundaries in end of life care research

2 Theorising end of life care (Vibeke Graven, Michael Hviid Jacobsen and Helle Timm)

3 Ongoing dilemmas and new approaches in palliative care and end of life care research: methods, ethics, and patient and public involvement in the United Kingdom (Clare Gardiner and Emilie Couchman)

4 Humanities collaborations in end of life care (Jordan Owen McCullough and Anna Magdalena Elsner)

5 Public engagement in palliative and end of life care research (Sonja McIlfatrick and Deborah Muldrew)

6 Total pain and human gut microbiota (Marian Krawczyk)

7 Inclusiveness in research teams: reflections on the Te Ārai Palliative Care and End of Life Research Group, a decade on (Tess Moeke-Maxwell, Merryn Gott and Brianna Smith)

8 Plural imaginaries: reflections on end of life care from India (Devi Vijay)

PART II Culture, communication, and context

9 Homing in on societal changes in meanings around place of death (Renske Visser)

10 Displacement and re-imagining end of life care (Parin Dossa)

11 Belonging at the end of life: genealogies of ‘culturally specific’ nursing home care in Europe (Olivia Killias and Eva Soom Ammann)

12 Sociocultural diversity in approaching pain at the end of life (Adrienne E. Strong and Megan D. Cogburn)

13 Bioethical frameworks in end of life care decision-making (Sandra Martins Pereira, Paulo J. Borges and Pablo Hernández-Marrero)

14 Cultural communication in palliative care (Liesbeth Mirjam van Vliet, Edison Iglesias de Oliveira Vidal, Masanori Mori, Constance Dahlin, Eve Namisango, Olaf Geerse and Diah Martina)

PART III Fields of practice

15 Standardisation of end of life care (Shimon Tashiro and Tatsuya Morita)

16 Compassionate Communities (Bert Quintiens and Steven Vanderstichelen)

17 New approaches to bereavement experience and research (Lucy Selman)

18 Talking about dying and end of life care (Gitte Koksvik)

19 Politics and practices of assisted dying (Marcos Freire de Andrade Neves)

20 Death, dying, and design (Bruce M. Tharp)

21 The arts in palliative care: critical perspectives on evidence and practice (Giorgos Tsiris and Jenny Baxley Lee)

PART IV Social inequalities

22 End of life and poverty (Maddy French and Yakubu Salifu)

23 Barriers to accessing end of life care for minority ethnic communities (Sophie Law-Clucas and Jonathan Koffman)

24 Gender and end of life care work (Merryn Gott, Tessa Morgan, Lisa Williams and Julia Slark)

25 Homelessness at the end of life (Kelli I. Stajduhar and Ashley Mollison)

26 Dying in the Margins: a case study of methods and impacts (Sam Quinn and Naomi Richards)

27 Who gets specialised care at the end of life? (Stephen Connor and Carlos Centeno)

PART V Policy interventions

28 The opportunities and limitations of ‘choice’ at the end of life (Sandy Whitelaw and David Clark)

29 National policies for end of life care (Chao Fang)

30 Public health interactions with palliative and end of life care (David Clark and Sandy Whitelaw)

31 The global spread of palliative care: how models, ideas, and practices travel (Natashe Lemos Dekker)

32 Mapping the development of palliative care in resource-poor settings: examples from African countries and contexts (Eve Namisango, William E. Rosa and Yakubu Salifu)

33 Palliative care as a global health issue (Joseph Clark)

34 Concluding points and future agendas: afterthoughts and afterlives (Annemarie Samuels and David Clark)