Thursday 7 March, 2019
08.30-09.00
Registration & Welcome Coffee
09.00-09.10
Welcome by the Chair of the Scientific Committee – Kenneth Chambaere (BE)
09.10-09.30
Introduction by an external speaker (TBC)
Plenary 1: Latest developments in assisted dying around the world
09.30-10.00
Developments in European countries – Agnes van der Heide (NL)
10.00-10.30
Recent developments and the future of MAiD in Canada – Jocelyn Downie (CAN)
10.30-11.00
A review of developments in Australia – Lindy Willmott (AUS)
11.00-11.15
Comfort Break
11.15-12.00
Global Panel
12.00-13.00
Lunch
Parallel Sessions 1
13.00-14.30
ASSISTED DYING & IDEOLOGY
MAiD in Canada – 2 years of experience Green-Wiebe-Gokool-Daws (CAN)
Euthanasia embedded in palliative care? – Bernheim (BE)
‘Pillarization’ as/and biopolitics. Institutional shaping of the requests for euthanasia in Belgium: a sociological approach – Hamarat (BE)
What do we know about the attitudes of Australian doctors to legalised assisted dying? – Rutherford (AUS)
Euthanasia in Italy: A battle between religion and secularism – Agterberg (IT)
CAPACITY
Cognitive Distortions and Capacity in MAID Requests where Mental Illness is Present – Dembo (CAN)
Executive dysfunction and capacity for medical decision-making in MAID Requests – Thorpe (CAN)
Rights! Freedom! Autonomy! Capacity? – Saul (AUS)
A new law in Taiwan: the convergence of legal capacity and mental capacity in Patient Autonomy Act – Hsieh (TWN)
VOLUNTARY STOPPING EATING & DRINKING
Bioethical and legal dilemmas on hunger strike in prison settings – Ciruzzi (ARG)
Is Voluntary Stopping Eating and Drinking a Form of Suicide? – McGee (AUS)
VSED for Advanced Dementia Patients in the US – Rivas (USA)
14.30-15.00
Coffee Break
Parallel Sessions 2
15.00-16.30
ROLE OF PROFESSIONALS IN ASSISTED DYING
Making Sense of Medical Aid in Dying: how physicians in Québec (Canada) experience MAiD in relation to the ordinary practice of medicine – Blouin (CAN)
The physician’s role in medical aid-in-dying: perspectives from Vermont – Buchbinder (USA)
Clinicians’ perspectives, and willingness to participate in voluntary assisted dying in Victoria, Australia – Detering (AUS)
Health Care Professionals’ Perspectives on Medical Assistance in Dying – Fast (CAN)
ASSISTED DYING: DEVELOPMENTS IN BELGIUM & THE NETHERLANDS
Slippery slope in the Netherlands? – De Vito (NL)
Study on denied requests for euthanasia submitted at the End-of-Life Clinic – Van den Ende (NL)
Factors associated with requesting and receiving euthanasia: A nationwide mortality follow-back study with a focus on psychiatric disorders, dementia and an accumulation of health problems related to old age – Evenblij (NL)
Euthanasia in Belgium: Shortcomings of the law and its application and of the monitoring of practice – Sterckx (BE)
ADVANCE DIRECTIVES
Legal and ethical challenges of new media in advance directives – Chan (UK)
Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients with chronic disease: an interview study in a Melbourne metropolitan hospital – Detering (AUS)
Prevalence of advance care directives among older Australians accessing health and residential aged care services: multi-centre audit study – Nolte (AUS)
The association between knowledge of end-of-life options and attitudes and behaviors regarding advance directives in Switzerland: Evidence from a National Population-based Study – Vilpert (SWI)
ACCESS TO ASSISTED DYING
Assisted dying laws in Victoria: Restricting discussions about end of life options – Willmott (AUS)
The Waxing and Waning of the Informed Consent Principle in the Law Governing End of Life Decision-making in Canada – McMorrow (CAN)
Deployment of ‘the dying’: Voluntary assisted dying in the Australian state of Victoria – Hempton (AUS)
Representing the collective voice of the newly emerging MAiD community in Canada – Brittain (CAN)
16.30-17.00 Coffee Break
Plenary 2: Conscientious objection
17.00-17.30
Conscientious objection by physicians/health care professionals – Daphne Gilbert (CAN)
17.30-18.00
Conscientious objection by institutions – Sylvie Tack (BE)
18.00-
Reception at Ghent Town Hall
Friday 8 March, 2019
08.30-09.00
Welcome Coffee
Parallel Sessions 3
09.00-10.30
VIEWS ON END-OF-LIFE TREATMENT
From legislative provisions on End of Life to application on clinical grounds: Which ethical challenges? A European – French, German, Italian – comparative perspective
Staff Positions on End-Of-Life Treatment in patients with incurable diseases – Gabison (ISR)
Non-beneficial treatment at the end of life in a palliative care population with cancer: a systematic review of reasons – Moors (NL)
What do people with life-limiting illness considering euthanasia/assisted dying think about treatments at the end-of-life? – Young (NZ)
Medical Futility Dispute Resolution Options in the United States: Law & Ethics Fundamentals – Pope (USA)
PROMOTION OF ADVANCE CARE PLANNING
Transforming Advance Care Planning Australia, a collaborative national effort – Nolte (AUS)
Advance directives: What does a campaign of loco-regional public debates reveal of citizens’ perception of them? – Pierre (FR)
The cost-effectiveness of advance care planning for older adults with end-stage kidney disease – Sellars (AUS)
ASSISTED DYING IN PSYCHIATRY
When Unbearable Suffering Incites Psychiatric Patients to Request Euthanasia: a Qualitative Study – Verhofstadt (BE)
Public and physicians’ support for euthanasia in people suffering from psychiatric disorders: A cross-sectional survey study – Evenblij (NL)
Perspectives from mental health professionals in Saskatchewan, Canada about the potential expansion of Medical Assistance in Dying to patients with mental illness – MacPherson (CAN)
10.30-11.00
Coffee Break
Plenary 3: Treatment withdrawal at the end of life
11.00-11.30
UK Law on Agreement Treatment Withdrawal – Celia Kitzinger (UK)
11.30-12.00
VSED Divulged: Legal, Ethical, and Clinical Status of the Voluntarily Stopping Eating and Drinking Exit Option – Thaddeus Pope (USA)
12.00-13.00
Lunch
Parallel Sessions 4
13.00-14.30
PALLIATIVE SEDATION
Palliative sedation at the end of life: state-of-the art, challenges and opportunities for improvement – Robijn (BE)
Deep and continuous sedation until death : A first national restrospective survey in France – Bretonnière (FR)
Development of an information leaflet for palliative sedation – Spichiger (SWI)
ASSISTED SUICIDE VS SUICIDE
Understanding the concept of suicide in an age of assisted dying (a global issue through the lens of Canadian experience) – Downie (CAN)
Suicide prevention in an age of medical assistance in dying: a Canadian perspective – Gupta (CAN)
Suicide or not suicide: how people involved in conversations about assisted suicide distinguish assisted suicide from suicide in Switzerland – Blouin (CAN)
END OF LIFE ISSUES IN DEMENTIA
Termination of life based on a written request: what do the Regional Review Committees say? – De Vito (NL)
Views on assisted dying for people with dementia: a Netnographic approach – Dekhoda (NZ)
Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies – Sellars (AUS)
ASSISTED DYING IN PSYCHIATRY
Primum non nocere: medical liability in end-of-life scenarios – Raposo (CHN)
Dying on an emergency department and the decisions at the end-of-life – Vermeir (BE)
Access to Home Palliative Care: pilot project in Portugal – Da Ponte (POR)
Moral Distress and Autonomy at the End of Life – Davis (USA)
14.30-15.00
Coffee Break
Plenary 4: Pressure points in end-of-life debates
15.00-15:30
Dementia, capacity and advance directives (TBC)
15.30-16.00
Palliative sedation as an alternative to assistance in dying? – James Downar (CAN)
Parallel Sessions 5
16.00-17.30
WITHHOLDING & WITHDRAWING TREATMENT
Withdrawing and withholding treatment in a post-best interests world – Cameron (AUS)
Issues of Overlap between “Suicide” and “Physician Aid in Dying” Battin M (USA)
Medical futility at the end-of-life: an Australian policy analysis – Close (AUS)
To eat or to die: a crucial dilemma in Elderly – Fournier (FR)
The Vincent Lambert case: An illustration of the limits of an EoL law to resolve all ethical clinical issues – Berthiau (FR)
Completion of medical certificates of death after an assisted death: An environmental scan of practices – Brown (CAN)
An Analysis of Euthanasia Statistics in Various Countries – Tanaka (JPN)
Drugs used for euthanasia: A repeated Population-Based Mortality Follow-Back Study in Flanders, Belgium – Dierickx (BE)
Medical Assistance in Dying in Canada: An assessment of the evidence with respect to advance requests, mature minors, and where a mental disorder is the sole underlying medical condition – Meslin (CAN)
DEFINING DEATH
Consensus, controversies and dilemmas concerning the definition of death in the USA – Levin (USA)
Brain Death and the Law: Hard Cases and Legal Challenges – Pope (USA)
Changing the Definition of Death – McGee (AUS)
Final death – Towers (USA)
18.30-
Congress Dinner at Ghent City Museum
Saturday 9 March, 2019
08:30-09.00
Welcome Coffee
Parallel Sessions 6
09.00-10.30
IMPLEMENTATION OF ASSISTED DYING
Developing a medical assistance in dying curriculum in specialty residency training programs – Macdonald (CAN)
Impact of a Unique Canadian approach to Medical Assistence in Dying by Nurse Practitoners in the patient’s home environment – Pelletier (CAN)
Psychiatric Patients Requesting Euthanasia: Initiatives for Sound Clinical and Ethical Decision Making – Verhofstadt (BE)
A regulatory analysis of Victoria’s Voluntary Assisted Dying Regime – White & Del Villar (AUS)
Neonatologists’ and neonatal nurses’ attitudes towards perinatal end-of-life decisions – Dombrecht (BE)
Every single day we resuscitate her… what are we doing, where are we going? Modifiable factors for improving end-of-life decision making for neonatologists, nurses, and parents in the Neonatal Intensive Care Unit – Piette (BE)
Age Distinction in Canada’s Bill C-14: Necessary or Discriminatory? – Morrison (CAN)
The fraught notion of a good death for children: Can a child ever really ‘die well’? – Moore (USA) +++ Minors & MAiD: Canadian Law Reform Process & Debate (Constance MacIntosh)
Minors & MAiD: Canadian Law Reform Process & Debate – MacIntosh (CAN)
ASSISTED DYING FROM A RIGHTS PERSPECTIVE
A re-examination of the compatibility of the English blanket ban on assisted suicide with the prohibition on ill-treatment in article 3 of the European Convention on Human Rights – Martin (UK)
The semantics of the ‘right to assisted dying’ – McCann (UK)
Legal change on assisted dying revisited – Lewis (UK)
Right-to-Die Society in Belgium: history & future – Van Hoey (BE)
POLICY DEVELOPMENT
Policy development in contested spaces: drivers of change and evidence based policy – Cameron (AUS)
The Voluntary Assisted Dying Act 2017: the role of the public service in significant government reform – Kearney (AUS)
Restricted palliative care – Ciurlionis (LIT)
Guidelines-based regulation on end-of-life care decisions in Japan – Iwata (JPN)
10.30-11.00
Coffee Break
Plenary 5: The long-term view on end-of-life practice
11.00-11.30
Ethical reflection on what has passed: predictions for the future – Freddy Mortier (BE)
11.30-12.15
Global Panel
Closing
12.15-12.30
Closing by Co-Chair of the Scientific Committee – Luc Deliens (BE)
12.30-13.30
Lunch
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