On this blog, Professor Thaddeus Pope tracks judicial, legislative, policy, and academic developments concerning medical futility and the limits on individual autonomy at the end of life.

Sunday, March 7, 2010

La Dama y la Muerte

La dama y la muerte, a short film by Spanish director Javier Recio Gracia, has been nominated for Best Animated Short Film at the 2010 Academy Awards. A sweet old lady is living alone in her farm, waiting for the arrival of death to meet her beloved husband again. One night, while sleeping, her life fades out and she is invited to cross death’s door. Bue when she is about to do so, the old lady wakes up inside a hospital’s ward. An arrogant doctor has brought her back to life and will fight hard against death to recover the old lady’s life at any cost.

Thursday, March 4, 2010

Disability, Health Care & Ethics – What Really Matters

The Maryland Health Care Ethics Committee Network and the Law & Health Care Program (L&HCP) at the University of Maryland School of Law
invite you to attend:
Disability, Health Care & Ethics – What Really Matters Wednesday, April 28, 2010
10:00 a.m. – 6:30 p.m.
Thomas B. Turner Building
Johns Hopkins University School of Medicine
720 Rutland Avenue, Baltimore, MD 21205
VISIT HTTP://WWW.LAW.UMARYLAND.EDU/MHECN
to view brochure & register online. (Click on Conferences)
Persons with cognitive and physical disabilities comprise a growing sector of our society. Yet, health care providers and ethics committee members may lack knowledge, skills, and insight related to disability rights and its impact on health care delivery and ethical decision-making. This conference is targeted to individuals who wish to broaden their understanding of the concerns and rights of people with disabilities in the context of health care encounters. Attendees will learn about the history of discrimination against people with disabilities and the rise of the "social model" of disability, current biases among some health care providers that disadvantage persons with disabilities, and knowledge, strategies, and resources health care professionals and ethics committee members should have or be able to access to appropriately respect disability rights at their institutions and in health care encounters.


9:15–10:00 a.m. Registration

10:00–10:15 a.m. Introductory Remarks
Diane E. Hoffmann, JD, MS, Associate Dean and Director, Law & Health Care Program


10:15–11:00 a.m. Disability Prejudice and Rights in a Modern Historical ContextSteven Eidelman, MSW, MBA


11:00 a.m.–12:00 p.m. Panel Session: Voices from Persons Living With DisabilityJanice Y. Jackson, MS
William J. Peace, PhD
Elizabeth Weintraub


12:00–1:00 p.m. Lunch

1:00–2:15 p.m. Concurrent Sessions A
Institutional Biases & Suggested Reforms
Elizabeth Pendo, JD


Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA


Lessons from the Ashley X Case
William J. Peace, PhD
Claire Roy, MA


2:30–3:45 p.m. Concurrent Sessions B


Disability Rights–ADA and Beyond
Nancy Pineles, JD


Facilitating Informed Decision-Making with People with Intellectual Disabilities
Judith Levy, MSW, MA


Ethical Decision-Making at the Margins
Serena San Wu, MD
Anita J. Tarzian, PhD, RN


4:00–5:15 p.m. Concurrent Sessions C


Institutional Biases and Suggested Reforms
Elizabeth Pendo, JD


Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA


Disability & Health Care Resource Allocation
Alicia Oulette, JD


5:15–6:30 p.m. Dinner Program PresentationWho is Disabled? Chronic Illness, Disability and Medicine
Rebecca Garden, PhD


Jointly sponsored by the Maryland Center for Developmental Disabilities & the Ethics Committee at Kennedy Krieger Institute, in partnership with Harbor Hospital and The Health Facilities Association of Maryland.

Wednesday, March 3, 2010

Delaware Statewide Webcast Supporting Military Survivors + Hospice Foundation of America’s National Teleconference “Living with Grief: Cancer and End-of-Life Care”

On March 24th the Delaware End-of-Life Coalition is offering a full day program with an AM web cast originating at the Trabant Center at UD going to Bayhealth Medical Center and the Beebe Health Campus followed by the 17th Annual HFA teleconference.

H:\End of Life Coalition\Logos\finalwreath.jpgOur keynote speaker in the morning is Jill LaMorie representing the Tragedy Assistance Program for Survivors in WashingtonDC. Instead of the panel discussion format used in previous years, we will have other local experts speaking about end-of-life topics/issues relevant to our state.

Register Today

WHAT:           Live, Statewide Webcast Supporting Military Survivors
         AND
                        17th Annual Hospice Foundation of America’s National Teleconference
                        “Living with Grief: Cancer and End-of-Life Care”

WHEN:           Wednesday, March 24, 2010
8:00 a.m. – 12:00 p.m.    Continental Breakfast, Keynote speaker and
     Expert local speakers
1:30 p.m. – 4:30 p.m.      Afternoon teleconference and local discussion
     Local organizations will be exhibiting, at all sites.

WHO:              Morning Presentations –

                        “An Overview of U.S. Military Deaths:  Unique Aspects of Survivors”
Keynote Speaker:  Jill LaMorie, MSW, LSW, ACSW, -
Director of Professional Education, TAPS, Washington, DC
                  
Hospice Initiative for Homeless and Rural Veterans”
Rebecca Nelson, MEd, BA, - Delaware Hospice and
Vice President, Delaware End-of-Life Coalition

“Cancer Research Trials”
Mary Ella Quillen, MSN, RN, CCRP, OCN, – Clinical Research Nurse, Bayhealth Medical Center

Medical Orders for Life-Sustaining Treatment (MOLST)
John Goodill, MD, Pain and Palliative Care, Christiana Care Health System

Morning Wrap-Up and Summary
Madeline Lambrecht, EdD, RN, FT - President, Delaware End-of-Life Coalition

WHERE:         The live, statewide webcast is conveniently located at 3 sites: 

University of Delaware, Trabant University Center, 17 W. Main Street, Newark

Bayhealth Medical Center, Kent General Hospital, General Foods Conference Room, 640 S. State Street, Dover

Beebe Health Campus, Medical Arts Building, McCurry Conference Room, 18947 John J. Williams Highway, Rehoboth Beach

RSVP:             Registration $59 fee for morning session includes lunch and 2.5 contact hours awarded by Bayhealth Medical Center.  Bayhealth Medical Center is an approved provider of continuing nursing education by the Delaware Nurses Association, an accredited approver by the American Nurses Credentialing Center's Commission on Accreditation.

                        Afternoon session is FREE – contact hours available for a small fee for multiple disciplines through the Hospice Foundation of America.
                       
To register online: http://deolc.org/events.html or
Fax registration form: 302-998-3143  

Registration deadline: March 17, 2010

HOST:             The Delaware End-of-Life Coalition and the University of Delaware will host the all day forum for professionals and community members interested in supporting military survivors and learning about cancer and end-of-life care.

Palliative Care Grand Rounds (Mar. 2010)

Larry Beresford is hosting this month's Palliative Care Grand Rounds at Growth House.  Check it out for highlights from a wide variety of end-of-life blogs during February.

Tuesday, March 2, 2010

After Life - "No, Really, You Are Dead"

Physicians sometimes have difficulty convincing surrogates that a patient is really dead.  Usually, convincing the patient herself is not an issue.  Not in the new movie After Life.




After a horrific car accident, Anna (Christina Ricci) wakes up to find the local funeral director Eliot Deacon (Liam Neeson) preparing her body for her funeral. Confused, terrified and feeling still very much alive, Anna doesn’t believe she’s dead, despite the funeral director’s reassurances that she is merely in transition to the afterlife. Eliot convinces her he has the ability to communicate with the dead and is the only one who can help her. Trapped inside the funeral home, with nobody to turn to except Eliot, Anna is forced to face her deepest fears and accept her own death. But Anna’s grief—stricken boyfriend Paul (Justin Long) still can’t shake the nagging suspicion that Eliot isn’t what he appears to be. As the funeral nears, Paul gets closer to unlocking the disturbing truth, but it could be too late; Anna may have already begun to cross over the other side. With an unrelenting edge of menace, After.life is a stylish psychological thriller which provocatively questions the line between life and death