Disability, Health Care & Ethics – What Really Matters

The Maryland Health Care Ethics Committee Network and the Law & Health Care Program (L&HCP) at the University of Maryland School of Law
invite you to attend: Disability, Health Care & Ethics – What Really Matters Wednesday, April 28, 2010
10:00 a.m. – 6:30 p.m. Thomas B. Turner Building
Johns Hopkins University School of Medicine
720 Rutland Avenue, Baltimore, MD 21205
VISIT HTTP://WWW.LAW.UMARYLAND.EDU/MHECN
to view brochure & register online. (Click on Conferences)

Persons with cognitive and physical disabilities comprise a growing sector of our society. Yet, health care providers and ethics committee members may lack knowledge, skills, and insight related to disability rights and its impact on health care delivery and ethical decision-making. This conference is targeted to individuals who wish to broaden their understanding of the concerns and rights of people with disabilities in the context of health care encounters. Attendees will learn about the history of discrimination against people with disabilities and the rise of the "social model" of disability, current biases among some health care providers that disadvantage persons with disabilities, and knowledge, strategies, and resources health care professionals and ethics committee members should have or be able to access to appropriately respect disability rights at their institutions and in health care encounters.


9:15–10:00 a.m. Registration

10:00–10:15 a.m. Introductory Remarks Diane E. Hoffmann, JD, MS, Associate Dean and Director, Law & Health Care Program


10:15–11:00 a.m. Disability Prejudice and Rights in a Modern Historical ContextSteven Eidelman, MSW, MBA


11:00 a.m.–12:00 p.m. Panel Session: Voices from Persons Living With DisabilityJanice Y. Jackson, MS
William J. Peace, PhD
Elizabeth Weintraub


12:00–1:00 p.m. Lunch

1:00–2:15 p.m. Concurrent Sessions A Institutional Biases & Suggested Reforms
Elizabeth Pendo, JD


Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA


Lessons from the Ashley X Case
William J. Peace, PhD
Claire Roy, MA


2:30–3:45 p.m. Concurrent Sessions B


Disability Rights–ADA and Beyond
Nancy Pineles, JD


Facilitating Informed Decision-Making with People with Intellectual Disabilities
Judith Levy, MSW, MA


Ethical Decision-Making at the Margins
Serena San Wu, MD
Anita J. Tarzian, PhD, RN


4:00–5:15 p.m. Concurrent Sessions C


Institutional Biases and Suggested Reforms
Elizabeth Pendo, JD


Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA


Disability & Health Care Resource Allocation
Alicia Oulette, JD


5:15–6:30 p.m. Dinner Program PresentationWho is Disabled? Chronic Illness, Disability and Medicine
Rebecca Garden, PhD


Jointly sponsored by the Maryland Center for Developmental Disabilities & the Ethics Committee at Kennedy Krieger Institute, in partnership with Harbor Hospital and The Health Facilities Association of Maryland.