Medical Futility Blog
On this blog, Professor Thaddeus Pope tracks judicial, legislative, policy, and academic developments concerning medical futility and the limits on individual autonomy at the end of life.
Monday, January 4, 2010
Legal Briefing on Advance Care Planning
Ariel Sharon Four Years Later: ‘Probably Comatose for Life’
Former Israeli Prime Minister Ariel Sharon suffered a stroke four years go that has left him comatose, a condition that is unlikely to change. Sharon, now age 81, suffered a mild stroke in December of 2005, followed by a massive one in January 2006 from which he has never regained consciousness.
Close friend and former advisor Dov Weisglass told the Associated Press that although Sharon's vital signs are good, there are no signs he is progressing out of his coma, despite several rumors over the years that were based on involuntarily movements of his eyes. (Arutz Sheva)
Saturday, January 2, 2010
The Impact of Ron Houben in the Media
Are families being more aggressive now? Are they less willing to accede to provider recommendations to move to palliative care? Are providers themselves less willing to make such recommendations?
Thursday, December 31, 2009
Montana Permits Assisted Suicide
The 68-page opinion is available here.
Keeping Granny on Life Support for the Money
Interestingly, at the end of 2010, providers may see the opposite issue: not surrogates prolonging treatment to get into the good tax year, but surrogates ending treatment quickly to stay within the good tax year.
Thursday, December 24, 2009
The 6th International Conference on Clinical Ethics Consultation (ICCEC)
"Get Me Home So I Can Kill Myself"
Australia
Values-Based Management: Bridging the Gap Between
Clinical and Organizational Ethics
Austria
Bio-Medical-Social Action by Bioethics: A Way to Combat
Loss of Wellbeing
Bangladesh
Ethical Dilemmas on the Double Role of Investigator Physicians
Brazil
Navigating the Murky Intersection Between Clinical and
Organizational Ethics: A Hybrid Case Taxonomy
Canada
The Art of Ethics and the Ethics of Spiritual Care
Canada
The Art of the Ethics Consultation: Form, Flexibility and Function
Canada
(more after the break)
Wednesday, December 23, 2009
Weighing Medical Costs of End-of-Life Care
In the Dartmouth Atlas reports, UCLA looks like a Park Bench Stickers Prompt Advance Care Planning
The faux plaques "commemorate" three fictional people – Donald J. McLeod, Rosa Maria Allende and Kathleen (Kay) Mandell. There, on a peeling bench backing onto Saturday, December 19, 2009
The Constitutionality of the Texas Advance Directives Act
The Journal of Legal Medicine just published the problem and best brief from the 2008 National Health Law Moot Court Competition. I drafted the problem. Loyola Chicago students (who regularly do quite well at this competition) drafted the best brief. The first issue concerns whether there is state action in the use of a 166.046-type mechanism by a hospital ethics committee in a private non-profit hospital. The second issue concerns whether a 166.046-type mechanism afford sufficient procedural due process. While the problem is based on a hypothetical case and a hypothetical statute, it is all patterned very closely on Texas.
Friday, December 18, 2009
Georgia State University Law Review, "Baby Doe at Twenty-Five"
Good Euthanasia Precedent in China Is Not Relevant
One of these was Zhang Zanning (on the left in the pic), a professor, lawyer, doctor, and arbitrator. He is director of the Health Law Institute at Southeast University Medical College. He came to discuss his theory of "oblique law." But I was a little more interested to hear about his prior work as a lawyer.
In early 1986, Xia Suwen suffered from cirrhosis of the liver, was sent to hospital and her condition failed to improve after various medical treatments. Her son, Wang Mingchen, urged Pu Liansheng, the doctor in charge of his mother to carry out euthanasia to their mother, and later the doctor agreed. Xia Suwen passed away after receiving an injection of on Pu Liansheng and Wang Mingcheng were arrested for murder and the local procuratorate charged the two. Zanning represented the doctor. After reporting the case to the Supreme People's Court and in accordance with the suggestion from it, the local court found both Pu and Wang not guilty on
Wednesday, December 16, 2009
Hot Pot
Putting all the different foods into the pot and fishing it back
out is only part of the fun.
The Chinese will never let your glass stand empty. And every
few minutes someone from your table (and many come over from
other tables) will make a toast. The respectful thing to do is
drink "bottoms up" and tilt your glass toward the other to show
you finished. Of course, too much of this can really test the
limits of one's endurance.
Circular Conference Rooms
was unable to convey with my limited photography skills is the
circular shape of the venue room.
While law schools often have semi-circular and horseshoe
shapes, I am not sure I have seen too many fully circular
rooms. This room had a center circle where the more senior
speakers and guests sit. A second larger ring is where other
professors sit. And students sit in the outer rings.
This design kept everyone engaged with the topic and with each
other. Interestingly, the shape of every table at almost
every of the many restaurants at which we ate in Chongqing was
also circular. Surely the same principle animates the design
of both academic rooms and dining tables: the locals' great
collegiality and friendliness.
Filial Piety and Overly Aggressive End-of-LIfe Care
Science and Law. While there are over 600 law schools in
China, SWUPL is one of only five universities that focuses on
law (as opposed to law being just a department in a larger
comprehensive university).
I compared challenges facing the United States and China with
respect to reducing end-of-life healthcare costs in order both
to preserve economic security and expand access. One obstacle
in both the United States and China is that families often
demand overly aggressive care, treatment more aggressive than
the patient would choose for herself.
But this is a far more significant obstacle in China for two
reasons. First, decision making is made on a familial,
collective level rather than on an individual, autonomy level.
So, advance care planning (patient consent) to do less is not
so viable and option. Second, filial piety runs deep, and
children feel that they must insist on all available
technology in order to be good children. See this carving
illustrating the concept from my visit to the fantastic Dazu
World Heritage Site.
Sunday, December 13, 2009
2009 AMA Resolution 3: Limiting Futile Care at End of Life (FL)
not adopted by the House of Delegates.
"RESOLVED, That our American Medical Association seek
legislation by the United States Congress that will allow the
creation of a methodology directed by physicians (MDs/DOs) that
permits physicians (MDs/DOs) to either not engage in or to
suspend futile care at the end of life; and that those
physicians (MDs/DOs) be given immunity from liability when such
decisions are made in good faith and within the standard of care
with clear and convincing legal and ethical standards.
(Directive to Take Action)."
Friday, December 11, 2009
Professor Forzley and Juliya
been a superb hostess. She scooped us up from the airport and
deposited us at the hotel. She has taken us out to eat and has
shown us notable sites. And, of course, she does all the
translating.
But that is just a job description and does not do justice to
the masterful execution of the duties. Juliya is actually quite
gifted for this type of job, which is probably a mix of innate
talent and experience dealing with many visiting professors.
Here she is with Professor Forzley at lunch today in Old Town.
Friday Lunch -- Hot Pot
traditional hot pot today, but seafood hot pot.
As you can tell from the picture, there is basically a large pot
with broth on a burner in your table. The server brings all
sorts of seafood and vegetables. They cook in the pot and she
fishes them out and serves them as they are done cooking. This
is a fun way to eat. And you get to try a whole bunch of
different things, almost too many.
Ciqikou Old Town - part 1
Forzley thought that we should visit this Community Health
Center. But the main focus of the Old Town (as with many like
that in San Diego) is shopping and fun.
Friday Morning in Chongqing
even better is the immediate surrounding area in the Shapinga
sector of the city.
There are pedestrian-only shopping walkways that stretch some 20
blocks in several directions around the hotel. I like that sort
of thing in any city. Here it is especially important because
one does not want to have to cross more streets than necessary
given the randomness of traffic rule compliance.
Southwest University of Political Science and Law
Political Science and Law.
The official U.S. - China health law conference begins Monday.
But since the university was on the way to something else this
morning, we stopped by to snap this photo by the front gate.
Blogging from China
indeed many Google-affiliated services, are simply not
accessible. Yahoo is king here.
Today, Friday Dec. 11th, was our first complete day. Professor
Forzley and I arrived on Wednesday night and stayed over in
Beijing. On Thursday, we flew to Chongqing and got situated
here.
It was a great day, really. Assuming that attaching pictures to
emails actually works to post them on the blog, I will do a
series of posts with pictures.
Monday, December 7, 2009
Dogs for Ethics Committees and Ethics Consultants
If Advocates say the dogs are used most often to calm witnesses and victims, especially children. But, they say, having a dog in the courthouse helps everyone. The mere presence of dogs can be highly effective. When you have opposing counsel down on his or her knees patting the dog before negotiations, that starts everything off in a friendlier way.
Saturday, December 5, 2009
Health Law in U.S. Law Schools
Wednesday, December 2, 2009
Yarick v. Pacificare - to Save Money, Docs Pressure Surrogates to Stop Life Support
Does Grady Memorial's Cessation of Outpatient Dialysis Constitute Tortious Abandonment
Patient advocates have an ongoing lawsuit to force Grady to reopen the outpatient dialysis clinic. But the judge has been cool to the arguments that Grady has denied these patients their rights under the state constitution. A group called Grady Advocates for Responsible Care plans to argue that Grady's closure of the clinic constitutes "medical abandonment" of the patients.Palliative Care Grand Rounds 1.11
The author, Jerry, is "a nurse practicing in the busy neurosciences intensive care unit of a large urban teaching hospital." His specific clinical interest is "caring for patients and families at the end of life." He is an ELNEC trainer and a graduate student.
Saturday, November 28, 2009
Betancourt v. Trinitas -- Most Requested NJ Court Opinion in 2009
Elder law attorney Donald Vanarelli noticed that "one of the most requested judicial opinions was the unpublished decision in Betancourt v. Trinitas Regional Medical Hospital, which didn’t involve any award of money damages at all.""[I]n the Betancourt case, Judge John Malone, the Chancery Judge in Union County, found that the decision to continue or terminate life support was not for the courts to decide. Instead, Judge Malone appointed a 73 year old comatose patient’s daughter as his guardian and granted her petition to restrain defendant Hospital from discontinuing or suspending life-supporting treatment."
Friday, November 27, 2009
Texas Advance Directives Act: More than 1000 Unilateral Refusals
One widely reported figure indicates that the formal process was used 65 times collectively in 11 hospitals over a 5-year period and in 5 hospitals over a 2-year period. That means it was used about once per "hospital year" [(11 x 5 = 55) + (5 x 2 = 10)]. These figures might be understated because the process may be used more frequently today, after: (1) further provider education, (2) surviving judicial and legislative challenges, and (3) increased end-of-life conflict.
There are 583 hospitals in Texas. And TADA has been in effect for over 10 years. Therefore, one might surmise that the formal process has been used nearly 6000 times (583 x 10). But that would be too high because not all hospitals will have these types of cases. Still, using even a conservative figure of just 100 hospitals, suggests that the process has been used at least 1000 times. To be clear, the process has a duration. So, it can be "used" in different ways. Take the 1000 cases figure. About 500 of these patients would have been transferred or would have died during the 10-day waiting period. Only the other 500 would have had life-sustaining treatment unilaterally withdrawn.
Moreover, it is worth noting that these 1000 cases would be relatively rare. These intractable cases would comprise only 6.70% of the far broader universe of nearly 15,000 futility ethics consultations (14,000 of which would have achieved provider-family consensus).
Wednesday, November 25, 2009
NEW - Presidential Commission for the Study of Bioethical Issues

President Obama said, “As our nation invests in science and innovation and pursues advances in biomedical research and health care, it’s imperative that we do so in a responsible manner. This new Commission will develop its recommendations through practical and policy-related analyses. I am confident that Amy and Jim will use their decades of experience in both ethics and science to guide the new Commission in this work, and I look forward to listening to their recommendations in the coming months and years."
The President’s Commission for the Study of Bioethical Issues will advise the President on bioethical issues that may emerge from advances in biomedicine and related areas of science and technology. The Commission will work with the goal of identifying and promoting policies and practices that ensure scientific research, health care delivery, and technological innovation are conducted in an ethically responsible manner.
Tuesday, November 24, 2009
Rom Houben -- No Cause to Overhaul Treatment Standards
Media in Europe and around the world are reporting that Rom Houben, who was diagnosed as being in a vegetative state for over 20 years, appears to have been conscious the whole time.Art Caplan argues that the Belgian medical reports strain credulity. But even if they were true, it is unclear that this case would or should ground a fundamental sea change in how patients with serious brain injuries are treated. We already know that there is a low but significant rate of diagnostic and prognostic inaccuracy. But that is true of most other areas of medicine (like oncology) as well. We make recommendations on the best available data -- even though that data fails to speak with certainty to the specific instant patient before us.
If the chance for error meant we aggressively treat everyone, then we would be over-treating 1000 patients in the chance that it might achieve some level of success for 1. Of course, while medicine cannot be designed this way, surrogate decisions surely will be affected by the high profile of this and similar cases.
Palmer v. ETCH -- The Legality of a Tennessee Medical Futility Policy
While an earlier meet and confer letter referenced EMTALA and the ADA, the complaint seeks a TRO and injunction solely on the basis of an alleged violation of the Tennessee Health Care Decisions Act, Tenn. Code Ann. 68-11-1801 to 1815 (which is largely based on the UHCDA). But exactly how strong is the case under the Tenn. HCDA?
Sure, as the complaint alleges, a health care provider and institution must "comply with a health care decision for the patient made by a person then authorized to make health care decisions for the patient." TCA 1808(b)(2). But section 1808 itself is clear that any such obligation holds only "except as provided in subsections (c), (d), and (e)"
Here, it appears that the hospital is invoking (and its "Inappropriate Intervention" policy is based on) section 1808(e): "A health care provider or institution may decline to comply with an individual instruction or health care decision that requires medically inappropriate health care or health care contrary to generally accepted health care standards applicable to the health care provider or institution."
1808(f) then providers that "a health care provider or institution that declines to comply with an individual instruction or health care decision pursuant to subsection . . . (e) shall: (1) Promptly so inform . . . any person then authorized to make health care decisions for the patient [and] (2) Provide continuing care to the patient until a transfer can be effected or until the determination has been made that transfer cannot be effected." This language clealy shows that Tennessee is NOT a so-called treat to transfer jurisdiction. This is confirmed in 1808(f)(4) which states "If a transfer cannot be effected, the health care provider or institution shall not be compelled to comply." Immunity is probably available for this conduct under 1811(a)(2). Nevertheless, the complaint does allege that ETCH "interfered" with family attempts to transfer Baby Gabriel to other facilities. Section 1808(f)(3) provides that "unless the patient or person then authorized to make health care decisions for the patient refuses assistance, [the facility must] immediately make all reasonable efforts to assist in the transfer of the patient to another health care provider or institution that is willing to comply with the instruction or decision." Moreover, without due diligent transfer efforts, subsection (f)(2) would also not be satisfied because there would be no reasonable basis for a "determination" that a transfer could not be effected. Since this is a fact question with life and death stakes, the court would probably have granted the TRO. The hospital had better have documented its transfer efforts. |












